The Gift of Stuttering
It’s cliché among the stuttering self-help community to say
that stuttering is a gift. Despite turning stuttering into a huge positive in
my life, I never really considered it a gift. If it was a gift at all, it was
an unwanted gift that I was forced to open and accept.
A couple months ago, I attended a one day workshop sponsored
by the New York City NSA chapters. Chris Constantino and Emma Alpern posed this
question:
Is our pride reflective of unsatisfactory therapy or is
there something special about stuttering?
Here’s what they said: Stuttering gives us access to
experiences that are not available to fluent speakers. The vulnerability of
stuttering allows for greater intimacy than fluent speech. It allows us to
relate to people in unique ways. We
have an increased likelihood of raw moments. These are the moments that
separate the monotony of daily life. These moments add meaning and texture to
our lives. We find excitement in the
unpredictable. We have a richness of experience that would not be available to
us if we did not stutter.
Flash forward to this national conference during a workshop
about stigma. Michael Boyle, a speech-language pathologist, researcher, and
person who stutters, shared his most recent research that revealed that
contact, or sharing your personal story, was more effective at changing
attitudes and beliefs about stuttering, as opposed to simply educating or
protesting. Our stories give us power. Our words force people to have patience,
compassion, and respect.
This year’s keynote speaker, David Resnick, reminded us to
“tell your story over and over again because it’s a story of bravery and
courage.”
The stuttering community amazes me every day. It’s having
tears through the struggle, but finding joy in the bravery. It’s friendships
full of empathy and empowerment. I’m not sure what other community enables such
rich relationships to be formed.
During a two hour open mic session, 20 somethings shared
their stories. Several had never spoken in front of a group and many had never
dared to step near a microphone. These are their words:
“I wouldn’t be the person I am today if I didn’t stutter”
“Look at the positive even through a hardship”
“My stuttering is a blessing”
“How different we all are, but how united stuttering makes
us”
“I know the words I want to speak, but with stuttering they
come out weak”
“I thought of changing my name. I was about to fill out the
paperwork, but then the conference happened.”
“These guys I’ve only known for several hours, but it felt
like I had known them for years”
“This is not about me. This is about the 1%”
“Embrace fear, overcome shame”
“Advocate for others who can’t speak up for themselves”
“My strength is because of the NSA”
“Continue, don’t stop, push forward”
“I’m really grateful I’m not just like everyone else”
“The cure is you yourself. Keep talking”
“I’ve always been social, I’ve always had friends, but I’ve
always felt alone.”
“Having friends who stutter changed everything for me.”
“I’ve come to realize that my stuttering is a gift to help
people with their struggles.”
And my favorite:
“This is so cool. I could stay up here and talk for hours.”
This was my 5th NSA conference and every year, I leave
with a hole in my heart. Really though, there is an actual pit in my stomach
of loneliness, isolation, and loss of friendship.
After this conference, however, I decided to play around
with Chris’s idea. The NSA is full of raw moments, open stuttering, courageous
acts, and an intimacy that is found no where else. But why can’t we carry this
with us in the world? On my travels home, I told the uber drive, a passenger
waiting for his flight, and the lady sitting next to me on the plane about
where I was, what I was doing, and what stuttering is.
I once went to a talk entitled, “What is happiness” discussing
recent research about what actually makes people happy. Two points from this
talk stood out to me. Happiness comes from:
1. Being apart of something bigger than yourself
2. Giving back and helping others
Stuttering gives me access to both of these things, a privilege
many fluent people do not have. So, thank you for the gift. It’s actually
pretty nifty.
Great job Courtney! Very well written, heart warming and fun to read!
ReplyDeleteYou're amazing. And I love you. So well written.
ReplyDeleteSarah
I've participated in two public debates on whether stuttering is a gift. One at a Speakeasy convention and another at an International Fluency Association convention. In both debates, I took the position that stuttering is NOT a gift. Those who saw it as a gift made two arguments. One, that it had made them more compassionate people, and two, that if they had never stuttered, they would never have met so many wonderful people. As far as the first argument goes, I think it's simply silly. If I had never stuttered, would I be less compassionate? More compassionate? The same? Darned if I know. And until we find a way to peer into alternate universes I never will know. As far as the second point goes, I think it misses the point. I can certainly understand how a stutterer can look at all the wonderful people he has met and be glad he stuttered, but that is a very different thing than saying stuttering is a gift. Would you give that gift to your child?
ReplyDeleteThank you for your comment. The debate is strong in the stuttering community and your thoughts are valid. You raise a question that I've thought a lot about - would I want my child to stutter? The answer is, absolutely not. To me, stuttering was an unexpected gift that was given to me. I did not ask for it and I did not want it. However, I was forced to accept it, and throughout the last few years, I'm starting to realize the significance and value of the gift. Would I give the gift to another person? No. I know that sounds a bit contradictory. My point is - the gift was given to me and I came to find out it was pretty valuable. Stuttering may absolutely not be a gift to some and I completely understand that.
DeleteRegarding compassion: you're right, we don't know. But by now I've met hundreds of people who stutter and I've seen significantly more empathy and compassion than I see in society as a whole. Do I know this for a fact? No. But it would make an interesting experiment...
The hundreds of people that you met who stutter were probably members of the self-help community. The reason that they were compassionate was because they were part of that community, not because they stutter. Nicolae Ceausescu, Kim Jong Il, and Winston Churchill stuttered and they were some of the least compassionate people in the world.
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